Intersectional observations of the Human Brain Project’s approach to sex and gender.

Tyr is also an Auroran (Women in Leadership in HE) with interests in intersectionality, representation, and equality issues.įothergill, B.T., Ulnicane, I., Knight, W., and Stahl, B. Tyr is interested in responsible data governance technology ethics and neuroethics information management ethics communication and outreach data security applied ethics in video games archaeological insights into human relationships with nonhumans in digital environments neuroscience history and developing a temporally-contingent framework for researcher reflection within Responsible Research and Innovation. Tyr originally trained as a palaeopathologist studying signs of disease and injury in skeletal remains from archaeological sites, but her interest in the processes and nature of research, led to a shift in personal research focus. She is Chair of the Data Governance Working Group for the Human Brain Project, and sits on the Medical Informatics Platform Data Governance Steering Committee. Tyr Fothergill is a Research Fellow in Ethics Support and Researcher Awareness on the Human Brain Project at De Montfort University in the Centre for Computing and Social Responsibility. A challenging and sobering watch, A Space in Time is as heartfelt as it is heartbreaking.Dr. It’s clear just how cruel the world can be, but this will truly make viewers appreciate what they have. The film also depicts the strength of the human spirit in how Nick and Klara manage to move forward, even when life does not always feel worth living. One learns that real community does exist: the Taussig family home was in fact constructed and modified for the boys on the goodwill of a building firm. His doting dad confronts the challenge with admirable aplomb, extracting light from such darkness and coming over as incredibly inspirational. Along the way the audience meets other sufferers of Duchenne, gaining the perspective of Harrison, who is older than the brothers and now in a wheelchair. In fact, the father shares several candid conversations with his sons, who alternate between naïve denial and acceptance. Refreshingly, Nick and Klara refuse to sugar-coat anything. They are brimming with the enthusiastic optimism typical of children, but one can’t help but feel pained at knowing what lies ahead for them and their family. They know nothing different and often simply live in the moment, enjoying typical boyhood play and interactions. One of the most notable aspects of the documentary is that one quickly sees beyond the disability and instead gets to know Theo and Oskar. In a way, the more stylistic elements juxtaposed with the raw reality emphasise just how unfathomable and complex such a disease is. Scenes of Nick’s wife Klara underwater permit a moment to pause and reflect, which is needed when so much of the material is hard to digest emotionally. The audience is drawn into a world they probably know little about, and soon find themselves invested in this family and the journey they have been forced to embark upon. Viewers are offered a mixture of poetic cinematography intertwined with the immediacy of a voyeuristic hand-held camera. In fact, this is not so much a film about disability as it is about human strength, optimism and love.Ĭo-directed by Riccardo Servini and the boy’s father, Nick Taussig, A Space in Time is an incredibly intimate, open and honest depiction of a disease seldom spoken of, let alone explored on screen. As of yet there is no cure, but the inhabitants of this informative and compassionate documentary remain hopeful. Those inflicted become increasingly incapacitated, relying on wheelchairs and, later, ventilators. Much more prevalent in boys but still astoundingly rare, the genetic condition weakens the muscles. I want to play football with my friends.” No child should be stripped of their right to such routine recreation, but Theo and his brother Oskar are both living with Duchenne muscular dystrophy.

Tyr a space in time